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Our little 18-month-old “Granny”…

 

Our little Chloe has been a bit sick for the past few days.  She has kept her momma (and daddy) nice and worried……and a little busy.  Even though she fought it by screaming/twisting/kicking/squirming at first, she now lets us put the oxygen tube in her nose.  With only a slight grunt in protest now.  And we all giggle because she looks like our little ol’ granny, pulling her O2 tank behind her.  Teasing her keeps the mood light and she has become possessive over her cords and oxygen tank.  Sweet little punkin’ head!!

 

 

 

Oh, what happened??!  Well, Chloe got a cold last week.  Which quickly turned ugly a day later.  She was having the hardest time breathing and her sweet little chest was retracting so hard, just to get a breath.  So, off to the ER she went, with daddy.  Once there, she received lots of meds, and quickly lost her tummy in all the commotion……all over her daddy (I told him, “…welcome to my life!”).  The Dr told Steve that they wanted to send her to a bigger hospital, with a children’s wing.  So after a parent swap (so puke-soaked daddy could go home) and a crazy transport in an ambulance, little Chloe and I settled in for the night, at 2 am.  Oh wait, no settling happened.  Because that was the start of that wretched oxygen tube up her nose.  It was a battle.  But she finally gave up in exhaustion and let that tube force the needed oxygen inside of her little toddler lungs.  And allowed the nurses to mess with her and adjust her cords and monitors ALL…..NIGHT…..LONG. Whew.

 

 

She woke up a little better.  And finally able to breathe on her own while awake now.  Still borderline low, but finally in the safe zone.  So we just hung out.  When nap time came around again, her oxygen dipped too low again……bummer.  But the Dr said we could take her home with oxygen for sleeping.

 

 

Home is much happier.  Because she can sleep in her bed…….without housekeeping, room service, volunteers, or nurses coming in all through the day and night.  (However, those interruptions are totally necessary and I champion their hard work at the hospital.  It’s just nice to be home.)

 

 

Chloe now knows the routine when napping or sleeping at night.  That tall cylinder in her room is her friend…..nothing to be scared of.  (However, it sits right outside her door, not right next to her bed.

 
Our little 18-month-old “granny”…
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And maybe some people use fancy tape to hold the cannula (oxygen tube) in place.  We use torn princess bandaids. :)

 

 

But the real hero…….is the Pulse Oximiter.  It measures the amount of oxygen in her blood, from her big toe.  She used to HAAATE that thing on her toe.  Now, they’re friends.  I especially love it because it tells us when her cannula has come out or if the oxygen isn’t working hard enough for her.

 

 

And last night, her oxygen levels dropped lower than ever.  So we adjusted placement, replaced cords, reset machines, tried different spots, tightened, loosened, gave her some of her inhaler……nothing helped.  So we noticed she was having a harder time breathing again, and it probably wasn’t a machine error.  So we called the on-call nurse (love them!) and he contacted the on-call pediatrician (love them too!) for us.  Back to the hospital we went. 

 

Needless to say, we’re glad Chloe finally allows that beeping monitor to hug on her big toe.  That little guy sure helps us out! :)

 

 

We are back home with safe sleeping oxygen levels again.  And they have been in perfect range since then.  Whew.  My mind has gone to unsafe places over the past few days.  You know, the worst-case-scenario types of places.  And sometimes I meddle in a why-in-the-world-is-she-still-struggling-to-breathe-even-though-medicated-and-on-oxygen place.  But all I can say, is that I’m grateful that we live now……and not 100 years or so ago.  Because this little lady would really be having a hard time without oxygen and x-rays and monitors of all kinds.  So today………..we feel grateful.

 

So, what’s up with little Chloe?  It’s probably Reactive Airway Disease. Which is very similar to asthma but can improve with age.  And even if it’s asthma, she’ll be just fine. 

 

Chloe gets tired of feeling crummy.  So she has been running around and playing just like normal, during the day.  And then once this little infection passes, the oxygen tanks will be sent away as well.  And then we’ll be better prepared when this happens again in the future.

 

 

Anyway, that’s where I’ve been hiding out.  At the hospital.  And trying to figure out PulseOx machines and oxygen tubes.  Those of you who use these things full time, every day……..I reverence you.  The beeping and adjustments and false alarms are enough to drive a person crazy. But what a blessing to help sustain life though, right?

 

We’ve been watched over from above, and loved on, and helped out a lot the past few days.  (Thank you, dear friends!)  Chloe’s on the mend…….and things will be back to normal soon.  Really soon. :)

 

-Ashley

 

Ashley Johnston
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Ashley Johnston

Owner at Make It & Love It
Ashley Johnston is a professional DIY costume maker, sewist, crafter, and owner of Make It & Love It. She is a mom of 5 and a wife to a very patient (with my craft clutter) husband. In case you’re wondering, she always chooses crafting/sewing/designing over mopping/dusting/wiping base boards……but bathrooms/laundry/full bellies are always attended to. Whew!
Our little 18-month-old “granny”…
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Comments

  1. Kathryn RN says:

    Thank you for letting us nurses know what it is to live on the other side of the bed. People like you remind me of why I chose to be a nurse.

  2. Virginia says:

    Wish you all the best for Chloe. I cannot imagine myself in such a situation wih my little 3-year-old girl. Impressive how nicely you are dealing with this, I’m sure your attitude is keeping Chloe up and running. You are an example for many of us.

  3. Kathy Angell says:

    We pray she be well so very soon!
    Love to you all. Kathy

  4. Lynn says:

    she’s a darling…..get well, sweet girl!!!

  5. Amy says:

    Ever since I read your post about your darling Chloe I felt the should to share about essential oils. Tonight I am feeling like I NEED to tell you in case you don’t know about them because I have witnessed so many people heal by having these tools. Have you heard about them? Do you use them? I have been using doTERRA’s for about 3 years and LOVE them! They give me so much peace because they work to bring the body into balance (even killing viruses) without side effects! There are some to help with opening airways, colds, flu, and help to oxygenate the blood, just to name a few. I would love to help you get some! They have change my life. I promise you will love them too! Send me an email or look here for more info! https://www.doterra.myvoffice.com/amypayne/ or email amyp.doterra@gmail.com

  6. kat says:

    so glad she’s doing better – we have a little girl around the same age and she had to be in the hospital for a long time around 3 months so I understand what you guys have been going through! Glad to hear you’re home and off the tank now. Hugs to your little cutie!

  7. Pooja says:

    Wish you and little Chloe all the best and a quick recovery.

  8. 狼女 says:

    希望她快点好

  9. Kristina Noall says:

    Can I just say, my hat is off to ALL of you–Chloe, you, your husband, and all these dear people who have commented about the sacrifices they’ve had to make, burdens they’ve had to shoulder, and worrying they’ve done about their kids when they’ve been sick. I’ve been so blessed so far in that we’ve never dealt with anything serious whatsoever, and I’m feeling much more grateful than usual for that after reading all these heartfelt comments. Very glad Chloe is doing better, and great job hanging in there and being positive, Ashley. What a wonderful mom your kids have!

  10. nana says:

    all of our wishes for your little baby choe, to recover very very quickly !

  11. Becky says:

    so many hugs.

  12. Cyndel says:

    Just went through a hospital stay with my 5 yo. Pneumonia…not fun, but at least we don’t have to worry about it happening again! I mean he could get it again, but it isn’t a definite thing.
    Hope she is at full health very soon!!

  13. MeagsK says:

    Oh Bless, so glad she is feeling better. I can see that Oxygen tank getting a Make It Love It make over and turned into a beautiful princess. How cool would it be for the kiddies too if the monitor on the big toe was a little puppet or something to make them smile. My prayers are with you and all those with sick children x x

  14. Daisha @ Salem Orthodontist says:

    So sorry. We just got home from the hospital with our 16 month old who had the scary, rattling and retracting breathing yesterday. Such a hard thing to go through. Hope all continues to go well with Chloe!

  15. Mehek says:

    hey ashley…just read about chloe…i have a 20 month old daughter myself so can totally understand what you must be going through….but don’t worry the good god is looking down and she will be alright before you know it…sending lots of love, wishes and prayers to little chloe from the uk:-)get well soon dear

  16. Helen says:

    Your daughter is so cute! I hope that she gets better soon!

    Helen
    Blue Eyed Beauty Blog

  17. Sarah says:

    Aww… our little one has had some health issues so I know how scary all those machines can be. And how necessary. And I also give thanks that we live in this day and age… all the best and hope things improve.

  18. sepide says:

    I wish perfect health for lovely Chloe <3

  19. Jody Brittain says:

    Get well Soon Chloe!

  20. Mercy says:

    God Speed Ashley!

  21. Lisa says:

    Way to go, Mom and Dad! You, and all the parents who care for their sick children, are truly heroes! You are doing an amazing job and you deserve some time to relax and recharge. Go easy on yourselves–order in dinner, go for frappaccinos, take turns getting naps and see a funny movie. Laughter is the best medicine and giggling little ones are the best! Wishing you and your family all the best!

  22. Heidi C says:

    My heart sank when I seen that Nasal Cannula on her sweet little face! Praise the Lord she is on the mend. Bless her little heart! Prayers for her and your family! I work in a hospital but could NEVER work in PEDS. I would cry all day long. She is such a little trooper!

  23. LindseyZ says:

    Prayers for her and the family! I have a daughter with asthma and know it can be scaryM

  24. Adva says:

    feel better chloe!

  25. Brie says:

    I am so glad she is ok. I know when my oldest daughter was little she stopped breathing one night. (she had pneumonia) I am so thankful for the amazing technology we have.

  26. Malori says:

    I am a huge fan of your blog, but I very rarely comment. You know my sister-in-law Nikki from high school and she was helping you out with some ordering and stuff for a while…..
    Anyways, I just wanted to tell you that you and your sweet little girl will be in our prayers. We are so blessed to live in this time with modern technology!
    I’m glad things are going better!

  27. Colleen B says:

    Oh my…I hope she is doing better! My daughter and I both struggle with asthma and I wanted to share something that has happened in our lives over the last 10 months. I have been in Zyrtec for the last 10 years, Singulair and Albuterol for the last 2-3. I had done Advair before that but body started reacting to the Advair and my “asthma cough” that wouldn’t go away turned out to be inflammation from the advair. My daughter, who is 7, has been on asthma and allergy meds for the last 4 years. Both of us would get respiratory infections every 3 months…pretty much like clockwork. So, last summer (of 2011) I started to learn more about food we eat and what it does to our bodies (I started with HFCS in Diet Coke…which I was addicted to) and other artificial sweeteners. Within days of learning what HFCS did to your body I stopped consuming it and threw out everything with it in my house. That fall we got HIT with a nasty, 3-4 month respiratory illness. It was bad. And the meds weren’t really working like I thought they should. Then I heard a doctor talk about dairy and that the first thing she tells her asthma patients to do is give up dairy. if they can’t do that, then switch to raw dairy . As you know, dairy makes us produce more mucus, something that isn’t good for an asthma flare up. And pasteurized dairy no longer contains certain enzymes that help us break down the dairy. Well, I decided to try and found an organic dairy farm that produced raw milk safely. Within 3 DAYS of switching just from regular milk to raw milk, my daughter’s cough stopped. Gone. When we ran out of that gallon I got regular milk again. 3 days later, her cough was back. So, we went back to raw and haven’t looked back. This started us down a path of switching to organic to avoid GMO (google Robyn O’Brien Tedx talk – it is about food allergies and GMO and you will be amazed)…another very likely culprit of asthma, giving up most processed food, and learning what foods heal when we are starting to have an allergy or asthma flareup (super greens powder, raw honey, coconut oil, raw dairy, beets, lemon water, kombucha….things that help our bodies stay healthy or fight off illness). I am amazed and in awe to tell you that my daughter and I have been COMPLETELY FREE of asthma meds since January 1. And, after I detoxed off Zyrtec (3 weeks of intense and constant itching…it was horrendous) we have been allergy meds free since then also. I did have to take a benedryl this week because the allergies are heightened right now, but I think I was having an allergy to a food I ingested because it was just that once and have been better since then. I would highly suggest any of your readers who said they are on meds and understand what you are going thru go online and do some research. It has literally changed our life. And for anyone who says you can’t afford to go organic, I say…I couldn’t afford all those meds! Our grocery bill is NOTHING compared to the medical bills for being in the doctor every 2-3 months (for multiple people in our home) and meds to go with it. Plus, just the non-monetary “cost” of living like that. So…feel free to contact me if you have questions. I love to talk about this because it has been so amazing. And I love to help other families learn some of these things too! Blessings!

    1. Amy says:

      My daughter too was having constant colds, with a horrendous cough, croup etc. She was “diagnosed” ( as she is too young) with probable asthma. I’ve had her off dairy now since before summer.. and though she has had a couple runny noses, NO terrible all night coughing, no need for inhalers or hospital visits! It’s been such a relief!! Definitely worthy of trying… as it’s a simple solution if it works for your child!

  28. d enise says:

    best wishes to sweet chloe! glad u were able to treat it right away !

  29. Vicki says:

    Poor little one! I hope she continues to get better.

  30. Lucinda says:

    Precious, precious little baby girl. That last picture is just priceless – what a trooper you have! And you yourself – so very brave and positive. What a gift!

  31. Lisa says:

    We have struggled with similar issues since our son was around a year. He seems to have the most trouble as the seasons change. Starting him on allergy medicines as well as asthma medications (although they don’t want to call it asthma) have really helped to keep his symptoms under control. We have also learned to recognize some of the signs that a flare up is getting ready to happen (running nose, hoarse voice, etc.) and can head things off with some extra medication before we get to the struggling to breathe place. It is so scary! I hope you are able to create a plan for Chloe that keeps her feeling her best!

  32. depro says:

    Oh, what a little cutie! Hope she is feeling better, and tickle her wiggling little toes for us grannies!

  33. Jenna says:

    Im so glad she’s feeling and doing better. Im a nurse and sometimes on my nights off I hear beeps in my sleep!!

  34. Marissa says:

    My oldest had the same problem when he was 13 months. He was in and out of the hospital for almost a year. It was so scary and frustrating. I’m sure glad she’s feeling better. I’m also a nurse who works in the Newborn ICU so I deal with those pulse ox monitors and oxygen all the time. they can get a bit annoying. I completely understand. But they sure are important. Sending prayers your way little Chloe.

  35. Laura says:

    Two of my babies have asthma (ok, they’re 8 and almost 4, but still). I feel for you. Going through something like that is so scary. Especially when you don’t know what’s going on. Yay for God’s gift of medical knowledge. :) Love and hugs to your whole family.

  36. Anshu says:

    Oh my! Having kids fall sick really sucks! My best wishes for little Chloe! Hope she is back to her usual self soon.

  37. Katy Cox says:

    Good thoughts being sent your way. It’s hard when our little ones suffer. Glad your baby girl is on the mend!

  38. AtoZ says:

    Thank goodness your baby girl is getting better. I would be scared out of my mind if one of my babies was having to go through all of that, you’re a strong woman and mother and I hope nothing but the best for you.

  39. Tricia says:

    Chloe and the rest of your family are in my prayers! God Bless!

  40. Mariya says:

    Oh my gosh, this is scary. Glad you’re all handling it so well. Hope it gets better soon.

  41. Angie says:

    I know just where you are coming from, and will be thinking of you and praying for all of you as you get through this. When my now 4 year old son was 9 months old he got a strep pneumonia that spread to his blood. It meant a week in our local hospital and then when things got worse he was flown to Phoenix Children’s hospital for a week, then we were sent home with oxygen, a pic line, and a month supply of antibiotics. It is scary, and makes you think seriously about what could happen. But, like you said, thank goodness for modern medicine and a Heavenly Father that loves us and answers our prayers. I am so impressed with how you have dealt with and handled this scary situation. You are wonderful parents with some of the cutest, sweetest little ones!

  42. Jenn says:

    So sorry to hear about little Chloe, babies should not be allowed to get sick. I’m glad she’s doing better and am sending prayers to your whole family. Hope everyone stays positive and well!

  43. Laura @ Laura's Crafty Life says:

    This must be so scary and exhausting for you! I can’t imagine trying to get my daughter to wear that oxygen (she’s 2)! I am glad she is on the mend. Take it easy and rest up! :)

  44. Amy says:

    My baby had RSV at 6 weeks old. It was horrible!!!! Seeing my tiny baby not able to breath and with oxygen in his nose…oh my heart still aches when i think about it. I’m so sorry for your baby! I hope she gets better soon!

  45. denise says:

    Las historias en todas partes del mundo con niños,suenan iguales niños lloran no pueden respirar, están aburridos, padres y madres preocupados y básicamente impotentes por sus pequeños.Yo pase una historia de neumonia hacen ya 18 años y comprendo lo del hospital y todo lo que eso supone. Envió mis mejores deseos para que tu pequeña se reponga muy pronto lo bueno es que depues estar mas picara y divertida, un beso para ambas.

  46. Stacey says:

    Oh, poor little Chloe! My heart goes out to her and to you and Steve. How scary to have such a little one so sick. But it must help (a lot) to have a PA in the house. Get well soon little sweetie!

  47. cucicucicoo says:

    oh that poor little sweetie!! :( i can imagine it’s been quite a few very scary days for you all, but thank goodness things seem to be under control. hugs and quick recovery to your munchkin!

  48. Kathleen says:

    So sorry to hear how sick Chloe’s been! That must of been very scary. So glad she is doing better. Prayers heading your way for a speedy recovery!
    blessings, Kathleen

  49. Jaci says:

    SOunds like RSV…my little guy had it at about 13 mos along with pnemonia (because if he’s going to do something he’s going all the way) and we spent a week in the hospital b/c of O2 saturation levels needing to go/stay up. SO glad they let you go home with O2. We too had issues with the cannula….my stroke of genius was to cut down the prong s tiny bit and tape that sucker to his pacy….then we just kept the pacy in his mouth 24/7. He had rarely used it before and it took me 6 months to get him off of it afterwards but it was worth it b/c he pulled the tape off his face within seconds of it being on there about 7x in a row! WOrd to the wise though since he had RSV he and other kiddos that get it do have RAD now so any little surgery tubes, tonsils etc goes from an hour-ish recovery to an 8 hour recovery due to lovely O2 sats! Hope she continues to rebound well!!

  50. Lynette says:

    Oh man, so scary! I’m glad she made friends with all the equipment. :) And she makes such a cute ‘granny.’ I’m glad that she is on the mend. I will keep your little Chloe in my prayers!

  51. Elizabeth Davis says:

    So glad your little one is okay. Such a brave little girl (and mommy)! Sending love and healing thoughts your way.

  52. Amy L says:

    Praying for you and that sweet baby girl! We have had our fair share of hospital visits and breathing treatments, but to have to use an oxygen tank I’m sure was very scary. Hang in there momma!

  53. ann says:

    Hope she gets better!

  54. Amy says:

    Dealing with oxygen is no fun. I have twin boys who were born at only 25 weeks. Xander skated through pretty good but my other son Jacob had complication after complication. He didn’t come home from the hospital until 2 weeks before his 1st birthday. And even then he wasn’t in perfect health. He was on 2L of oxygen, an O2 monitor and feeding tube. Now at almost 2 and half he has kicked his O2 habit and hasn’t look back.
    We used duoderm and tegaderm to keep his prongs on his face. They are very breathable so they didn’t irritate his skin so bad. Also after putting the O2 probe on his toe we would wrap it with ‘coban’; this is a special tape that only sticks to itself. It made the probes last much longer and stay put much better. We would often put a sock on his foot too.
    I hope little Chloe is doing better. There is nothing worse than watching your child suffer and not be able to do anything.

  55. Jillia says:

    I so feel for you and your sweet little punkin. My son who just turned 8 has been dealing with breathing issues since about 9 months of age. He was diagnosed with RAD too, since they really don’t diagnose with asthma at such a young age. He has asthma now, but his condition has improved by leaps and bounds. He takes singulair and Flovent, and has a rescue inhaler, but really only needs it when he is sick because his controller meds work so well for him. It is so scary when they are so little because they can’t tell you what they feel, just keep hanging in there. My prayers are with you all.

  56. Barnicles says:

    big hugs! wow what a fighter. great things will come from that girl!

    hope you got some sleep and feeling better now.

    ps the plasters are so cool!

    Bx

  57. RobyGiup says:

    Poor cutie… And poor parents too, I can’t imagine how worried you have been…
    I’m happy she feels better and hope the recovery will be fast!
    A big hug to all the family!

  58. Galina. says:

    Glad she is feeling better. Praying for all of you!

  59. Christine says:

    I’m sure she was the cutest little patient they had! Glad to here she is doing better.

  60. abby @ thingsforboys says:

    Poor little girl! Hope she gets better soon. xx

  61. melane says:

    Glad she is feeling better, being a mom is so different. it is a blessing to live in this day and age. I hope you catch some z’s as well as your littlest princess.

  62. Donna says:

    Glad she’s feeling better. I feel your pain. It can be incredibly frightening watching your child struggle to breath. We had to suffer through it for several weeks before our little one (now 5 months) had a tracheostomy that probably saved her life. She is on oxygen w/ humidity, the PulseOx and a feeding pump 24/7. She sleeps in a bassinet right next to me so I’ll know if she stops breathing or needs suction. All the equipment is frustrating and we pray for the day when she no longer needs them, but we are also thankful b/c our little princess probably wouldn’t be w/ us were it not for such amazing technology.

  63. Chelsea says:

    I’m so sorry, those moments of motherhood are the very hardest. When we watch our children struggle in poor health. I hope she grows out of it very soon! She’s so beautiful!

  64. Heather says:

    Ohhhhh Poor Chloe! But that first picture is priceless- so sad and beautiful! I hope she gets feeling better really really soon.

  65. Lisa says:

    Oh my gosh, she is too darn cute! I love those pictures. I’m glad she’s feeling better and hopefully she can get rid of the tubes and the tank soon.

  66. KaMarlowete says:

    Poor little C! She’s a doll, though, even with her o2!

  67. Sarah says:

    Oh, poor baby!! And poor momma…I know that’s got to be terrifying. Glad she’s doing better and hope she continues to get better!

  68. Aubrey R says:

    Ohmy. How tough. Our little 5 year old girl had to be rushed to the ER two weeks ago and hospitalized. She was sick and got dehydrated so fast…not able to keep anything down at all. It was terrifying, so when I read about your ups and downs with your little girl (and she’s so much smaller and younger!) my heart felt it. I’m so glad she’s doing better and (((hugs))) from a fellow mama who has seen a hospital room lately.

  69. Laura Hawkins says:

    Praying for all of you!

  70. sana says:

    Such an awesome little girl and very lucky girl to have such strong parents!! especially that daddy who put up with that throw up :) ….plz keep us updated on her!! much love !

  71. Shruti says:

    OMG! Take care, of yourself too! You’ll be in my prayers today… Hugs from India!

  72. Camille says:

    I love your blog. I have followed it for a long time, because I love what you make but mostly because I can relate to your life. I have three kids, the oldest just started kindergarten, the youngest 18 months. We lived in Georgia too, and made the huge move out west via car, kids throwing up, etc., not too long before you did. And I loved it all. And now your sweet baby has given you a scare. My mind has wandered to those scary places too, with my second child. He is miraculously doing so much better now. I’m so glad Chloe is okay! What a little trooper to put up with those tubes! And she looks stinkin’ cute just up from her nap. :). Good luck with the monitoring…sounds stressful! And hopefully she will be better soon!

  73. Katrine says:

    Wow. That’s rough. She is a cutie! I hope she gets better soon.

  74. molly says:

    Oh baby girl, you look so precious with those princess bandaids, but I’m hoping that after this, mama never has to put them on your face again!!! I hope she is on the mend a little more each day! Hugs to you guys.

  75. Michelle says:

    I am sending good thoughts your way. I too (like many others who have posted) have had both my girls in the NICU for illnesses. It is so incredibly scary but as parents we need to stay strong. You are doing such a great job of being strong. Your positive and grateful attitude is inspiring. Thank you for sharing your experience with us and I can’t wait to see your little monkey tube free and posing for some new outfit you have whipped up in your “spare” time :)

  76. lucyl says:

    God is good all the time mam ashley ….youre lil angel will be fine .Our Lord will not leave us nor forsake us

  77. susan says:

    Oh goodness. What a little dear. That must have been so frightfully scary. I am so happy she is on the mend. Hugs and good healing thoughts for your family

  78. brittany says:

    so scary. It is the worst when they can’t breathe. Emma had RSV when she was just a few months old and we spent my birthday and conference weekend in the hospital. We definitely are watched over from above. I know there were guardian angels in our hospital room with us. Hope your little one gets over this soon so mommy can get some sleep.

  79. Sheila in Sf says:

    What a beautiful little girl. My prayers are with you all. Hope this will be behind you soon and things back to normal.

    Best.

  80. ashley says:

    aw, im so sorry. she totally does make one adorable lil granny tho.

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Hi, I’m Ashley—the DIY-enthusiast behind this crazy blog!

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